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  • 1
    Electronic Resource
    Electronic Resource
    Psychometric considerations in evaluating health-related quality of life measures (1993)
    Springer
    Quality of life research 2 (1993), S. 441-449 
    Details
    ISSN: 1573-2649
    Keywords: Reliability ; validity ; responsiveness
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract How does one determine if a measure of health-related quality of life (HRQL) is adequate for clinical trials? Psychometric methods are frequently used to answer this question. What is psychometrics all about? In this paper we address these questions, discussing common psychometric evaluation procedures applied to HRQL measures. Specifically, we discuss issues regarding the evaluation of reliability and validity (including responsiveness).
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00422218
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  • 2
    Electronic Resource
    Electronic Resource
    Development of the Kidney Disease Quality of Life (KDQOLTM) Instrument (1994)
    Springer
    Quality of life research 3 (1994), S. 329-338 
    Details
    ISSN: 1573-2649
    Keywords: Dialysis ; end stage renal disease ; kidney disease ; instrument development ; quality of life
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract This paper describes the Kidney Disease Quality of Life (KDQOLTM) Instrument (dialysis version), a self-report measure that includes a 36-item health survey as the generic core, supplemented with multi-item scales targeted at particular concerns of individuals with kidney disease and on dialysis (symptom/problems, effects of kidney disease on daily life, burden of kidney disease, cognitive function, work status, sexual function, quality of social interaction, sleep). Also included were multi-item measures of social support, dialysis staff encouragement and patient satisfaction, and a single-item overall rating of health. The KDQOLTM was administered to 165 individuals with kidney disease (52% female; 48% male; 47% White; 27% African-American; 11% Hispanic; 8% Asian; 4% Native American; and 3% other ethnicities), sampled from nine different outpatient dialysis centres located in Southern California, the Northwest, and the Midwest. The average age of the sample was 53 years (range from 22 to 87), and 10% were 75 years or older. Internal consistency reliability estimates for the 19 multi-item scales exceeded 0.75 for every measure except one. The mean scores for individuals in this sample on the 36-item health scales were lower than the general population by one-quarter (emotional well-being) to a full standard deviation (physical function, role limitations due to physical health, general health), but similar to scores for dialysis patients in other studies. Correlations of the KDQOLTM scales with number of hospital days in the last 6 months were statistically significant (p〈0.05) for 14 of the 19 scales and number of medications currently being taken for nine of the scales. Results of this study provide support for the reliability and validity of the KDQOLTM.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00451725
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    Paper (German National Licenses)
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  • 3
    Electronic Resource
    Electronic Resource
    Responsiveness to change: an aspect of validity, not a separate dimension (1992)
    Springer
    Quality of life research 1 (1992), S. 73-75 
    Details
    ISSN: 1573-2649
    Keywords: Reliability ; responsiveness ; validity
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract Assessment of health-related quality of life is accelerating in naturalistic observational studies, clinical trials, and clinical practice. Some researchers have argued that the ability of a quality of life instrument to detect clinically important changes over time, “responsiveness”, is a distinct psychometric property from the measure's reliability and validity. We discuss the important implications of this argument and counter that responsiveness is actually one indication of a measure's validity.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00435438
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  • 4
    Electronic Resource
    Electronic Resource
    Reliability and validity of the Katz Adjustment Scales in an epilepsy sample (1992)
    Springer
    Quality of life research 1 (1992), S. 63-72 
    Details
    ISSN: 1573-2649
    Keywords: Epilepsy ; epilepsy surgery ; Katz Adjustment Scales ; mental health ; multitrait scaling analysis ; quality of life ; social health
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract Development of quality of life measures de novo is time-consuming and expensive, and a number of instruments are already available for general use. Reevaluation and refinement of quality of life tools are needed to improve the existing pool of measures. In this study, data from a sample of 328 epilepsy patients were used to revise a measure of social adjustment and emotional status developed in the 1960s, the 127-item form R1 of the Katz Adjustment Scales (KAS-R1). Using a comprehensive item analysis procedure, we increased the number of items used in scoring the KAS-R1 from 76 to 113 and substantially improved the reliability of scales in both the criginal sample of 328 epilepsy patients and in a second administration to a ‘cross-validation’ sample of 193 epilepsy patients. Support for the validity of the revised KAS-R1 scoring system was obtained in a known groups analysis of patients who had previously undergone surgery for epilepsy: mean scores were significantly higher (p〈0.05) on 11 out of 14 scales in the revised KAS-R1 for patients who were completely seizure-free compared to patients who were having seizures with loss of consciousness, after adjusting for age, gender, and anticonvulsant medication use.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00435437
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  • 5
    Electronic Resource
    Electronic Resource
    An overview of generic health-related quality of life measures for HIV research (1992)
    Springer
    Quality of life research 1 (1992), S. 91-97 
    Details
    ISSN: 1573-2649
    Keywords: Acquired immune deficiency syndrome ; COOP Charts ; HIV Overview of Problems/ Evaluation System ; human immunodeficiency virus ; Medical Outcomes Study measures ; quality of life ; Quality of Well-Being Scale
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract This paper provides a selective review of instruments currently being employed to evaluate generic healthrelated quality of life in studies of persons with human immunodeficiency virus (HIV). Instruments examined include the Quality of Well-Being Scale, the HIV Overview of Problems/Evaluation System, the COOP Charts, and six Medical Outcomes Study-based measures: the SF-20, SF-30, AIDS-HAQ, SF-36, SF-38 and SF-56. Relative strengths and weaknesses of the measures are discussed.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00439716
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    Paper (German National Licenses)
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  • 6
    Electronic Resource
    Electronic Resource
    Do the pictures influence scores on the Dartmouth COOP Charts? (1992)
    Springer
    Quality of life research 1 (1992), S. 247-249 
    Details
    ISSN: 1573-2649
    Keywords: COOP Chart ; illustration
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract Objective. To determine the effect of illustrations on COOP Chart responses. Study Design. Randomized split-half design of 177 patients discharged from a medical centre during a 3 month interval. Patient responses were obtained. However, there are benefits from the use of illustrations. Further research measures. Demographic characteristics and health status. Results. No response differences were observed between patients who received COOP Chart illustrations and those who did not receive illustrations. Conclusion. Pictures do not appear to affect responses to COOP Charts. However there are benefits of the use of illustrations. Also, further research should be conducted with other patient populations and other COOP Charts before conclusive statements can be made regarding the use of illustrations with the COOP Charts.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00435633
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  • 7
    Electronic Resource
    Electronic Resource
    The ‘states versus weights’ dilemma in quality of life measurement (1993)
    Springer
    Quality of life research 2 (1993), S. 167-168 
    Details
    ISSN: 1573-2649
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00435220
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    Paper (German National Licenses)
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  • 8
    Electronic Resource
    Electronic Resource
    International use, application and performance of health-related quality of life instruments (1993)
    Springer
    Quality of life research 2 (1993), S. 367-368 
    Details
    ISSN: 1573-2649
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00422214
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    Paper (German National Licenses)
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  • 9
    Electronic Resource
    Electronic Resource
    The benefits and pitfalls of health services research funded by proprietary firms (1994)
    Springer
    Quality of life research 3 (1994), S. 231-233 
    Details
    ISSN: 1573-2649
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00434896
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  • 10
    Electronic Resource
    Electronic Resource
    The Swedish Health-Related Quality of Life Survey (SWED-QUAL) (1993)
    Springer
    Quality of life research 2 (1993), S. 33-45 
    Details
    ISSN: 1573-2649
    Keywords: Health survey ; health-related quality of life ; rellability ; validity
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract We present a Swedish Health-Related Quality of Life Survey (SWED-QUAL) that was adapted from measures used in the Medical Outcomes Study (MOS). The development of these measures spans more than 20 years and their reliability and validity have been extensively tested. The SWED-QUAL consists of 61 items that form 11 multi-item scales tapping aspects of physical, mental, social and general health. The instrument was mailed in 1991 to a random stratified sample of 2,366 individuals from the Swedish general population aged 18–84 years and to a stratified random sample of 2,349 individuals who had been seriously injured in a traffic accident. The response rates were 61% and 59%, respectively. Telephone follow-up of non-responders indicate that most of those tended to have a better health-related quality of life than responders. The SWED-QUAL satisfied all of the psychometric criteria that were evaluated. Multitrait scaling provided strong support for item discrimination. Cronbach's alpha exceeded 0.78 for all scales. Scores tended to be lower among older than younger people, and among females compared to males. The good response rate indicates that the content of the SWED-QUAL is considered relevant by people at large, that the results from the general population sample could be used for comparisons with other samples and the instrument used for further studies of the effectiveness of a broad spectrum of medical interventions.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1007/BF00642887
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    Paper (German National Licenses)
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