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  • 1
    Electronic Resource
    Electronic Resource
    Measuring health-related quality of life in adolescents: agreement between raters and between methods of administration (2000)
    Oxford, UK : Blackwell Science Ltd
    Child 26 (2000), S. 0 
    Details
    ISSN: 1365-2214
    Source: Blackwell Publishing Journal Backfiles 1879-2005
    Topics: Medicine , Psychology
    Notes: The aim of this study was to evaluate the agreement between children and proxies as well as the agreement between methods of administration in assessing Health-Related Quality of Life (HRQoL) using the TNO AZL Children's Quality Of Life (TACQOL) questionnaire. A random sample from a Dutch cohort of 14-year-old very low birth weight children and their parents were invited to participate in a face-to-face (n= 150) or telephone interview (n= 150). Participants were also sent a questionnaire by mail. The response rate was 83%. Inter-rater and intermethod agreement were generally good in observable HRQoL domains, and moderate in less readily observable, and possibly less stable, domains such as moods, pain and physical symptoms, and social functioning. In measuring children's HRQoL using the TACQOL, the results and their interpretation are dependent on the source of information and the method of administration.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1046/j.1365-2214.2000.00181.x
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    Paper (German National Licenses)
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  • 2
    Electronic Resource
    Electronic Resource
    Measuring health-related quality of life in children: the development of the TACQOL parent form (1998)
    Springer
    Quality of life research 7 (1998), S. 457-465 
    Details
    ISSN: 1573-2649
    Keywords: HRQoL; ; children; ; TACQoL
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract Health-related quality of life (HRQoL), conceptualized as patients' own evaluations of their health status, is an important criterion in evaluating health and health care and in the treatment of individual patients. Until now, few systematic attempts have been made to develop instruments to assess the HRQoL of children using such a conceptualization. This article describes the conceptualization and results of a study aiming to develop such an instrument for children aged 6–15 years using their parents as a proxy. The feasibility and psychometric performance of the instrument were evaluated in a study of 77 patients of the paediatric out-patient clinic of Leiden University Hospital. For each of the a priori-defined domains, a parent form scale could be constructed with satisfactory reliability and moderate correlations with the other scales. Only some of the parents indicating health status problems also signalled negative reactions to these problems. This is, in our view, a strong argument for the distinction between health status and quality of life (QoL). The correlation coefficients between the parent form and a children's questionnaire were low. Overall, the psychometric performance of the TACQOL parent form looks promising, which suggests that this instrument– with some modifications–can indeed be used to assess group differences in HRQoL in children. The results, however, should be replicated in larger samples, currently under study. The relation between parents' proxy reports on the HRQoL of their children and children's self-reports needs further investigation.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1023/A:1008848218806
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    Paper (German National Licenses)
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  • 3
    Electronic Resource
    Electronic Resource
    The proxy problem: child report versus parent report in health-related quality of life research (1998)
    Springer
    Quality of life research 7 (1998), S. 387-397 
    Details
    ISSN: 1573-2649
    Keywords: Health-related quality of life ; health status; ; proxy; ; child report; ; parent report.
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract This study evaluates the agreement between child and parent reports on children's health-related quality of life (HRQoL) in a representative sample of 1,105 Dutch children (age 8–11 years old). Both children and their parents completed a 56 item questionnaire (TACQOL). The questionnaire contains seven eight-item scales: physical complaints, motor functioning, autonomy, cognitive functioning, social functioning, positive emotions and negative emotions. The Pearson correlations between the child and parent reports were between 0.44 and 0.61 (p〈0.001). The intraclass correlations were between 0.39 and 0.62. On average, the children reported a significantly lower HRQoL than their parents on the physical complaints, motor functioning, autonomy, cognitive functioning and positive emotions scales (paired t-test: p〈0.05). Agreement on all of the scales was related to the magnitude of the HRQoL scores and to some background variables (gender, age, temporary illness and visiting a physician). According to multitrait-multimethod analyses, both the child and parent reports proved to be valid.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1023/A:1008801802877
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    Paper (German National Licenses)
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