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  • 1
    Electronic Resource
    Electronic Resource
    Development and psychometric evaluation of the TAPQOL: A health-related quality of life instrument for 1–5-year-old children (2000)
    Springer
    Quality of life research 9 (2000), S. 961-972 
    Details
    ISSN: 1573-2649
    Keywords: Health-related quality of life ; Preschool children ; Preterm birth ; Quality of life instruments
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract The 43-item TNO-AZL Preschool Children Quality of Life (TAPQOL) questionnaire was developed to meet the need for a reliable and valid instrument for measuring parent's perceptions of health-related quality of life (HRQoL) in preschool children. HRQoL was defined as health status in 12 domains weighted by the impact of the health status problems on well-being. The aim of this study was to evaluate the psychometric performance of the TAPQOL. A sample of 121 parents of preterm children completed the TAPQOL questionnaire (response rate 88%) as well as 362 parents of children from the general population (response rate 60%). On the base of Cronbach's α, item-rest correlation, and principal component analysis, the TAPQOL scales were constructed from the data for the preterm children sample. The psychometric performance of these scales was evaluated for both the preterm children sample and the general population sample. Cronbach's α ranged from 0.66 to 0.88 for the preterm children sample and from 0.43 to 0.84 for the general population sample. The unidimensionality of the separate scales was confirmed by principal component analysis for both the preterm children sample and the general population sample. Spearman's correlation coefficients between scales were, on average, low. T-tests showed that the very preterm children, the children with chronic diseases, the less healthy and the less happy children had lower mean scores on the TAPQOL scales than healthy children, indicating a worse quality of life. This study shows that the TAPQOL is a reliable and valid parent's perception of HRQoL in preschool children. More research is needed to evaluate the psychometric performance of the TAPQOL in different clinical populations.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1023/A:1008981603178
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    Paper (German National Licenses)
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  • 2
    Electronic Resource
    Electronic Resource
    Measuring health-related quality of life in children: the development of the TACQOL parent form (1998)
    Springer
    Quality of life research 7 (1998), S. 457-465 
    Details
    ISSN: 1573-2649
    Keywords: HRQoL; ; children; ; TACQoL
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract Health-related quality of life (HRQoL), conceptualized as patients' own evaluations of their health status, is an important criterion in evaluating health and health care and in the treatment of individual patients. Until now, few systematic attempts have been made to develop instruments to assess the HRQoL of children using such a conceptualization. This article describes the conceptualization and results of a study aiming to develop such an instrument for children aged 6–15 years using their parents as a proxy. The feasibility and psychometric performance of the instrument were evaluated in a study of 77 patients of the paediatric out-patient clinic of Leiden University Hospital. For each of the a priori-defined domains, a parent form scale could be constructed with satisfactory reliability and moderate correlations with the other scales. Only some of the parents indicating health status problems also signalled negative reactions to these problems. This is, in our view, a strong argument for the distinction between health status and quality of life (QoL). The correlation coefficients between the parent form and a children's questionnaire were low. Overall, the psychometric performance of the TACQOL parent form looks promising, which suggests that this instrument– with some modifications–can indeed be used to assess group differences in HRQoL in children. The results, however, should be replicated in larger samples, currently under study. The relation between parents' proxy reports on the HRQoL of their children and children's self-reports needs further investigation.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1023/A:1008848218806
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    Paper (German National Licenses)
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  • 3
    Electronic Resource
    Electronic Resource
    The proxy problem: child report versus parent report in health-related quality of life research (1998)
    Springer
    Quality of life research 7 (1998), S. 387-397 
    Details
    ISSN: 1573-2649
    Keywords: Health-related quality of life ; health status; ; proxy; ; child report; ; parent report.
    Source: Springer Online Journal Archives 1860-2000
    Topics: Medicine
    Notes: Abstract This study evaluates the agreement between child and parent reports on children's health-related quality of life (HRQoL) in a representative sample of 1,105 Dutch children (age 8–11 years old). Both children and their parents completed a 56 item questionnaire (TACQOL). The questionnaire contains seven eight-item scales: physical complaints, motor functioning, autonomy, cognitive functioning, social functioning, positive emotions and negative emotions. The Pearson correlations between the child and parent reports were between 0.44 and 0.61 (p〈0.001). The intraclass correlations were between 0.39 and 0.62. On average, the children reported a significantly lower HRQoL than their parents on the physical complaints, motor functioning, autonomy, cognitive functioning and positive emotions scales (paired t-test: p〈0.05). Agreement on all of the scales was related to the magnitude of the HRQoL scores and to some background variables (gender, age, temporary illness and visiting a physician). According to multitrait-multimethod analyses, both the child and parent reports proved to be valid.
    Type of Medium: Electronic Resource
    URL: http://dx.doi.org/10.1023/A:1008801802877
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    Paper (German National Licenses)
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